Category Archives: Consumer Health Informatics

Demo environment of Swedish patients’ EHR access

So, today I’ve been showing my own online access to my electronic health record (EHR) to lots of people from all around the world. I was asked if there’s a way to see the e-service “Journalen” even if you don’t have … Continue reading

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Salzburg Global Seminar

I am so excited it’s almost a little ridiculous. I’ve been invited to join session 553 at the Salzburg Global Seminar! The session is called Toward a Shared Culture of Health:Enriching and Charting the Patient-Clinician Relationship, and some of the most prominent researchers … Continue reading

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Pokémon Go and physical activity

Today I’m working against a deadline. I have an article that needs to be submitted tonight, and a pile of exams to grade. Despite this, the urge to Catch ‘Em All drove me (and the rest of the family out … Continue reading

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DOME and research collaboration

Last year I joined the DOME consortium. The consortium is built by researchers from all over Sweden, and the main focus is on studies of the introduction of patients’ online access to their electronic health records (PAEHR). The DOME consortium … Continue reading

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End-of-life resources

Through the ever so excellent Smart Patients forum, I found this page with end-of-life resources compiled by a stage IV cancer patient. Fantastic starting point to explore what happens at the end-of-life and how we can best prepare for it. [post 40 in … Continue reading

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Reading my EHR as a way to prepare

[Warning for oversharing – this post will contain details from my electronic health record] I’m waiting for my primary care center to call me back, and while I’m waiting I log into my online electronic health record. It’s always good to be … Continue reading

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The story of illness

I’m a researcher in health informatics – but growing up, what I always dreamed of was being an author, a storyteller. As a researcher, I of course get to write. And write, and write. But the storytelling is seldom in … Continue reading

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