Category Archives: Patient experience

Burden of interacting with healthcare

Today I was at the MYiHealth conference in Stockholm. I gave a workshop together with Sara Riggare and Eskil Degsell and the topic was Digital Patients leading development of healthcare. We had a great time, and the discussions in our … Continue reading

Posted in Conference reflections, Patient experience, Uncategorized | Tagged , | 1 Comment

From Transparency to Collaboration

A couple of weeks ago, I finally had the time to sit down and write a reflection based on my participation in the Salzburg global seminar and my own experiences of using the the Swedish patient accessible electronic health record … Continue reading

Posted in Consumer Health Informatics, Patient experience, Publications, Uncategorized | Tagged | Leave a comment

How open are you?

A article with the title Whom Do You Tell When You’re Sick? Maybe Everyone You Know in the New York Times stirred up a little discussion when shared in my Facebook flow the other day. One of the comments made by … Continue reading

Posted in #blogg100, Patient experience, Social media | Leave a comment

On empathy

I just had to share this. I hope I remember it myself the next time an urge to start “silver lining” comes to me. On the other hand, perhaps silver lining is a good coping strategy? In the blog post Cancer … Continue reading

Posted in #blogg100, Patient experience, Uncategorized | Tagged , , , , | Leave a comment

End-of-life resources

Through the ever so excellent Smart Patients forum, I found this page with end-of-life resources compiled by a stage IV cancer patient. Fantastic starting point to explore what happens at the end-of-life and how we can best prepare for it. [post 40 in … Continue reading

Posted in #blogg100, Consumer Health Informatics, Patient experience, Social media, Uncategorized | Tagged , , , | Leave a comment

The great mysteries of life

I have now experienced not just the beginning of life, in giving birth to my two children, but also the end of life, in the recent death of my father. This is my own very personal reflection on these mysteries of … Continue reading

Posted in Patient experience, Uncategorized | Tagged , , | Leave a comment

Reading my EHR as a way to prepare

[Warning for oversharing – this post will contain details from my electronic health record] I’m waiting for my primary care center to call me back, and while I’m waiting I log into my online electronic health record. It’s always good to be … Continue reading

Posted in Consumer Health Informatics, Patient experience | Tagged , , | 1 Comment