Category Archives: Patient experience

How open are you?

A article with the title Whom Do You Tell When You’re Sick? Maybe Everyone You Know in the New York Times stirred up a little discussion when shared in my Facebook flow the other day. One of the comments made by … Continue reading

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On empathy

I just had to share this. I hope I remember it myself the next time an urge to start “silver lining” comes to me. On the other hand, perhaps silver lining is a good coping strategy? In the blog post Cancer … Continue reading

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End-of-life resources

Through the ever so excellent Smart Patients forum, I found this page with end-of-life resources compiled by a stage IV cancer patient. Fantastic starting point to explore what happens at the end-of-life and how we can best prepare for it. [post 40 in … Continue reading

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The great mysteries of life

I have now experienced not just the beginning of life, in giving birth to my two children, but also the end of life, in the recent death of my father. This is my own very personal reflection on these mysteries of … Continue reading

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Reading my EHR as a way to prepare

[Warning for oversharing – this post will contain details from my electronic health record] I’m waiting for my primary care center to call me back, and while I’m waiting I log into my online electronic health record. It’s always good to be … Continue reading

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The importance of a shared meal

Food is important to me. I think everyone who knows me can vouch for that. I don’t know if people can be categorized into those that eat to live and those that live to eat, but I would probably belong … Continue reading

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The story of illness

I’m a researcher in health informatics – but growing up, what I always dreamed of was being an author, a storyteller. As a researcher, I of course get to write. And write, and write. But the storytelling is seldom in … Continue reading

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